It's nine o'clock and Jenna has been at it since we got here at three this afternoon. She is doing round four of Solumedrol and just started her first round of IVIG. I talked to Dr. Guthery yesterday about her not being able to have a BM without an enema ever since she had the barium. He told me then that the IVIG had been approved by our insurance, so she was going to start it soon. I wasn't sure if he had ordered it for today, but it turns out that he did. She had to do the Solumedrol first and then IVIG after that. She was able to tolerate speeding up the steroid, so that took an hour off of that infusion time. The IVIG is supposed to run over three hours, but there is still plenty left in the bag and we are at the three hour mark. This will be a long night.
Dr. Guthery ordered an abdominal X-ray to check stuff out and he said that she looked pretty good, as far as the amount of stool in her colon went. He recommended taking a higher dose of miralax yesterday to help her move her bowels, and we talked more about that today. He told me to have her take one square of ex-lax twice a day, so she can add that to her growing list if meds. At least it comes in chocolate. We also talked about the MRI and I am supposed to call tomorrow to schedule it for next week. I will hopefully be able to schedule it for Thursday or Friday when we are down here for the next round of steroids. Jenna told him about the rumblings low in her belly and he thinks it is probably just air moving through. She was also concerned at the frequency of her hiccups, but he didn't have any thoughts on that.
Jenna has been asleep for abut an hour and a half now. She gets so exhausted by the end of the day that she asks for us to have family prayer so that she can go to bed. She was on the beginner swim team last year and I have been concerned about signing her up for it again. She complains of muscle pain and weakness often and she gets fatigued easily. Dr. Guthery said that it might actually be good for her. I will need to discuss it with the coach and make sure that he understands.
In ther non-hospital related news, today was the kids' field day at school and tomorrow will be the last day. Hallelujah. Paige is working at the pool as a lifeguard and it opens on Saturday. David and I have been working a lot out in the yard. It was neglected for a long time before we moved in. It is coming together nicely!
No comments:
Post a Comment